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Λυσοσωμικά Νοσήματα: Η μάχη για έγκαιρη διάγνωση, ισότιμη φροντίδα και αξιοπρέπεια

27 Φεβρουάριος 2026

Λυσοσωμικά Νοσήματα: Η μάχη για έγκαιρη διάγνωση, ισότιμη φροντίδα και αξιοπρέπεια – Newsbeast<meta name="description" content="Τα λυσοσωμικά νοσήματα, αν και σπάνια, επηρεάζουν ουσιαστικά τη ζωή εκατοντάδων οικογενειών στην Ελλάδα, φέρνοντας μαζί τους σύνθετες ιατρικές, κοινωνικές και θεσμικές προκλήσεις."><meta name="robots" content="index, follow"><meta property="og:title" content="Λυσοσωμικά Νοσήματα: Η μάχη για έγκαιρη διάγνωση, ισότιμη φροντίδα και αξιοπρέπεια"><meta property="og:type" content="article"><meta property="og:image" content="https://www.newsbeast.gr/image/s1200x762/fill/file/files/1/2026/02/spanies-pathiseis.jpg"><meta property="og:url" content="https://www.newsbeast.gr/health/prolipsi-therapeia/arthro/12925135/lysosomika-nosimata-i-machi-gia-egkairi-diagnosi-isotimi-frontida-kai-axioprepeia"><meta property="og:description" content="Η κα Καίτη Θεοχάρη μιλά για τις προκλήσεις των σπάνιων παθήσεων στην Ελλάδα, τον ρόλο του Συλλόγου «Η Αλληλεγγύη» και την ανάγκη ενός ολοκληρωμένου εθνικού σχεδίου για τα σπάνια νοσήματα."><meta property="og:locale" content="el_GR"><meta property="og:site_name" content="Newsbeast"><meta property="og:image:url" content="https://www.newsbeast.gr/image/s1200x762/fill/file/files/1/2026/02/spanies-pathiseis.jpg"><meta property="og:image:width" content="1200"><meta property="og:image:height" content="762"><meta property="article:published_time" content="2026-02-27T09:30:00.000Z"><meta property="article:author" content="Μάριον Κοντογιάννη"><meta property="article:section" content="ΠΡΟΛΗΨΗ & ΘΕΡΑΠΕΙΑ"><meta property="article:tag" content="ασθενείς"><meta property="article:tag" content="σπάνιες παθήσεις"><meta name="twitter:card" content="summary_large_image"><meta name="twitter:site" content="@newsbeast"><meta name="twitter:title" content="Λυσοσωμικά Νοσήματα: Η μάχη για έγκαιρη διάγνωση, ισότιμη φροντίδα και αξιοπρέπεια"><meta name="twitter:image" content="https://www.newsbeast.gr/image/s1200x762/fill/file/files/1/2026/02/spanies-pathiseis.jpg"><meta name="twitter:description" content="Τα λυσοσωμικά νοσήματα, αν και σπάνια, επηρεάζουν ουσιαστικά τη ζωή εκατοντάδων οικογενειών στην Ελλάδα, φέρνοντας μαζί τους σύνθετες ιατρικές, κοινωνικές και θεσμικές προκλήσεις."><meta name="twitter:creator" content="@newsbeast"><br> <div class="internal-linking-related-contents-pro"><div class="internal-linking-related-contents-pro-template template-4 ilrcp-linkable-related-content"><img width="250" height="141" src="https://zoumekalytera.gr/wp-content/uploads/2026/05/eodi-afxisi-sta-krousmata-RSV.jpg" class="alignleft wp-post-image" alt="" srcset="https://zoumekalytera.gr/wp-content/uploads/2026/05/eodi-afxisi-sta-krousmata-RSV.jpg 1280w, https://zoumekalytera.gr/wp-content/uploads/2026/05/eodi-afxisi-sta-krousmata-RSV-300x169.jpg 300w, https://zoumekalytera.gr/wp-content/uploads/2026/05/eodi-afxisi-sta-krousmata-RSV-1024x576.jpg 1024w, https://zoumekalytera.gr/wp-content/uploads/2026/05/eodi-afxisi-sta-krousmata-RSV-768x432.jpg 768w, https://zoumekalytera.gr/wp-content/uploads/2026/05/eodi-afxisi-sta-krousmata-RSV-250x141.jpg 250w, https://zoumekalytera.gr/wp-content/uploads/2026/05/eodi-afxisi-sta-krousmata-RSV-100x56.jpg 100w, https://zoumekalytera.gr/wp-content/uploads/2026/05/eodi-afxisi-sta-krousmata-RSV-600x338.jpg 600w" sizes="auto" loading="lazy" fetchpriority="low"><div class="postTitle"><strong>Διαβάστε επίσης:</strong><a href="https://zoumekalytera.gr/ygeia/eody-ayxisi-sta-kroysmata-rsv-se-apodromi-covid-gripi/"><span>ΕΟΔΥ: Αύξηση στα κρούσματα RSV, σε αποδρομή CoViD - γρίπη</span></a></div></div></div><p> <sticky-header id="stickyHeader" data-options='{"observeTarget":".headImageCnt"}' data-astro-cid-qo2kes6d="" class="stickyHeader hdApp isArticle"> </sticky-header> <main class="container defViewPadder"> </main></p> <article class="_articleDefault_8c3d1_1"> <category-and-tags class="_categoryAndTagsCnt_18ubh_63 _singleLine_18ubh_74"> </category-and-tags> <h2 class="_articleSubTitle_18ubh_35">Η κα Καίτη Θεοχάρη μιλά για τις προκλήσεις των σπάνιων παθήσεων στην Ελλάδα, τον ρόλο του Συλλόγου «Η Αλληλεγγύη» και την ανάγκη ενός ολοκληρωμένου εθνικού σχεδίου για τα σπάνια νοσήματα.</h2> </article> <div class="internal-linking-related-contents-pro"><div class="internal-linking-related-contents-pro-template template-4 ilrcp-linkable-related-content"><img width="250" height="141" src="https://zoumekalytera.gr/wp-content/uploads/2026/05/ipefthini-epikinonia-stin-periodo-ton.jpg" class="alignleft wp-post-image" alt="" srcset="https://zoumekalytera.gr/wp-content/uploads/2026/05/ipefthini-epikinonia-stin-periodo-ton.jpg 1280w, https://zoumekalytera.gr/wp-content/uploads/2026/05/ipefthini-epikinonia-stin-periodo-ton-300x169.jpg 300w, https://zoumekalytera.gr/wp-content/uploads/2026/05/ipefthini-epikinonia-stin-periodo-ton-1024x576.jpg 1024w, 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