Λιγότερο απο 1 λεπτό Διάρκεια άρθρου: Λεπτά

Λυσοσωμικά Νοσήματα: Η μάχη για έγκαιρη διάγνωση, ισότιμη φροντίδα και αξιοπρέπεια

27 Φεβρουάριος 2026

Λυσοσωμικά Νοσήματα: Η μάχη για έγκαιρη διάγνωση, ισότιμη φροντίδα και αξιοπρέπεια – Newsbeast<meta name="description" content="Τα λυσοσωμικά νοσήματα, αν και σπάνια, επηρεάζουν ουσιαστικά τη ζωή εκατοντάδων οικογενειών στην Ελλάδα, φέρνοντας μαζί τους σύνθετες ιατρικές, κοινωνικές και θεσμικές προκλήσεις."><meta name="robots" content="index, follow"><meta property="og:title" content="Λυσοσωμικά Νοσήματα: Η μάχη για έγκαιρη διάγνωση, ισότιμη φροντίδα και αξιοπρέπεια"><meta property="og:type" content="article"><meta property="og:image" content="https://www.newsbeast.gr/image/s1200x762/fill/file/files/1/2026/02/spanies-pathiseis.jpg"><meta property="og:url" content="https://www.newsbeast.gr/health/prolipsi-therapeia/arthro/12925135/lysosomika-nosimata-i-machi-gia-egkairi-diagnosi-isotimi-frontida-kai-axioprepeia"><meta property="og:description" content="Η κα Καίτη Θεοχάρη μιλά για τις προκλήσεις των σπάνιων παθήσεων στην Ελλάδα, τον ρόλο του Συλλόγου «Η Αλληλεγγύη» και την ανάγκη ενός ολοκληρωμένου εθνικού σχεδίου για τα σπάνια νοσήματα."><meta property="og:locale" content="el_GR"><meta property="og:site_name" content="Newsbeast"><meta property="og:image:url" content="https://www.newsbeast.gr/image/s1200x762/fill/file/files/1/2026/02/spanies-pathiseis.jpg"><meta property="og:image:width" content="1200"><meta property="og:image:height" content="762"><meta property="article:published_time" content="2026-02-27T09:30:00.000Z"><meta property="article:author" content="Μάριον Κοντογιάννη"><meta property="article:section" content="ΠΡΟΛΗΨΗ & ΘΕΡΑΠΕΙΑ"><meta property="article:tag" content="ασθενείς"><meta property="article:tag" content="σπάνιες παθήσεις"><meta name="twitter:card" content="summary_large_image"><meta name="twitter:site" content="@newsbeast"><meta name="twitter:title" content="Λυσοσωμικά Νοσήματα: Η μάχη για έγκαιρη διάγνωση, ισότιμη φροντίδα και αξιοπρέπεια"><meta name="twitter:image" content="https://www.newsbeast.gr/image/s1200x762/fill/file/files/1/2026/02/spanies-pathiseis.jpg"><meta name="twitter:description" content="Τα λυσοσωμικά νοσήματα, αν και σπάνια, επηρεάζουν ουσιαστικά τη ζωή εκατοντάδων οικογενειών στην Ελλάδα, φέρνοντας μαζί τους σύνθετες ιατρικές, κοινωνικές και θεσμικές προκλήσεις."><meta name="twitter:creator" content="@newsbeast"><br> <div class="internal-linking-related-contents-pro"><div class="internal-linking-related-contents-pro-template template-4 ilrcp-linkable-related-content"><img width="250" height="167" src="https://zoumekalytera.gr/wp-content/uploads/2026/04/sindromo-ragismenis-kardias-bori-na.jpg" class="alignleft wp-post-image" alt="" srcset="https://zoumekalytera.gr/wp-content/uploads/2026/04/sindromo-ragismenis-kardias-bori-na.jpg 1800w, https://zoumekalytera.gr/wp-content/uploads/2026/04/sindromo-ragismenis-kardias-bori-na-300x200.jpg 300w, https://zoumekalytera.gr/wp-content/uploads/2026/04/sindromo-ragismenis-kardias-bori-na-1024x683.jpg 1024w, https://zoumekalytera.gr/wp-content/uploads/2026/04/sindromo-ragismenis-kardias-bori-na-768x512.jpg 768w, https://zoumekalytera.gr/wp-content/uploads/2026/04/sindromo-ragismenis-kardias-bori-na-1536x1024.jpg 1536w, https://zoumekalytera.gr/wp-content/uploads/2026/04/sindromo-ragismenis-kardias-bori-na-250x167.jpg 250w, https://zoumekalytera.gr/wp-content/uploads/2026/04/sindromo-ragismenis-kardias-bori-na-100x67.jpg 100w, https://zoumekalytera.gr/wp-content/uploads/2026/04/sindromo-ragismenis-kardias-bori-na-600x400.jpg 600w" sizes="auto" loading="lazy" fetchpriority="low"><div class="postTitle"><strong>Διαβάστε επίσης:</strong><a href="https://zoumekalytera.gr/syndromo-ragismenis-kardias-mporei-na-pethanei-kaneis-apo-ti-stenachoria/"><span>Σύνδρομο ραγισμένης καρδιάς: Μπορεί να πεθάνει κανείς από τη στεναχώρια;</span></a></div></div></div><p> <sticky-header id="stickyHeader" data-options='{"observeTarget":".headImageCnt"}' data-astro-cid-qo2kes6d="" class="stickyHeader hdApp isArticle"> </sticky-header> <main class="container defViewPadder"> </main></p> <article class="_articleDefault_8c3d1_1"> <category-and-tags class="_categoryAndTagsCnt_18ubh_63 _singleLine_18ubh_74"> </category-and-tags> <h2 class="_articleSubTitle_18ubh_35">Η κα Καίτη Θεοχάρη μιλά για τις προκλήσεις των σπάνιων παθήσεων στην Ελλάδα, τον ρόλο του Συλλόγου «Η Αλληλεγγύη» και την ανάγκη ενός ολοκληρωμένου εθνικού σχεδίου για τα σπάνια νοσήματα.</h2> </article> <div class="internal-linking-related-contents-pro"><div class="internal-linking-related-contents-pro-template template-4 ilrcp-linkable-related-content"><img width="250" height="167" src="https://zoumekalytera.gr/wp-content/uploads/2026/04/pou-pigeni-i-agapi-otan.jpg" class="alignleft wp-post-image" alt="" srcset="https://zoumekalytera.gr/wp-content/uploads/2026/04/pou-pigeni-i-agapi-otan.jpg 1800w, https://zoumekalytera.gr/wp-content/uploads/2026/04/pou-pigeni-i-agapi-otan-300x200.jpg 300w, https://zoumekalytera.gr/wp-content/uploads/2026/04/pou-pigeni-i-agapi-otan-1024x683.jpg 1024w, https://zoumekalytera.gr/wp-content/uploads/2026/04/pou-pigeni-i-agapi-otan-768x512.jpg 768w, https://zoumekalytera.gr/wp-content/uploads/2026/04/pou-pigeni-i-agapi-otan-1536x1024.jpg 1536w, https://zoumekalytera.gr/wp-content/uploads/2026/04/pou-pigeni-i-agapi-otan-250x167.jpg 250w, https://zoumekalytera.gr/wp-content/uploads/2026/04/pou-pigeni-i-agapi-otan-100x67.jpg 100w, https://zoumekalytera.gr/wp-content/uploads/2026/04/pou-pigeni-i-agapi-otan-600x400.jpg 600w" sizes="auto" loading="lazy" fetchpriority="low"><div class="postTitle"><strong>Διαβάστε επίσης:</strong><a href="https://zoumekalytera.gr/poy-pigainei-i-agapi-otan-chorizoyme/"><span>Πού πηγαίνει η αγάπη όταν χωρίζουμε;</span></a></div></div></div><p> </p> <div class="container" data-astro-cid-a3jj45ac=""> <section class="_marketNews" data-astro-cid-tvkb6kqx=""> <h2 data-astro-cid-tvkb6kqx="">MARKET NEWS</h2> </section></div> <articles-inf-feed class="noPrint" postid="12925135"> </articles-inf-feed> <div class="article-point"> Το πρωτότυπο άρθρο <a target="_blank" href="https://www.newsbeast.gr/health/prolipsi-therapeia/arthro/12925135/lysosomika-nosimata-i-machi-gia-egkairi-diagnosi-isotimi-frontida-kai-axioprepeia" style="white-space: nowrap;width: 300px;overflow: hidden">https://www.newsbeast.gr/health/prolipsi-therapeia/arthro/12925135/lysosomika-nosimata-i-machi-gia-egkairi-diagnosi-isotimi-frontida-kai-axioprepeia</a> ανήκει στο <a target="_blank" href="https://www.newsbeast.gr/health/prolipsi-therapeia/arthro/12925135/lysosomika-nosimata-i-machi-gia-egkairi-diagnosi-isotimi-frontida-kai-axioprepeia">ΥΓΕΙΑ – Newsbeast</a> . </div> <div class="xs_social_share_widget xs_share_url after_content main_content wslu-style-2 wslu-share-box-shaped wslu-fill-colored wslu-share-m-5 wslu-none wslu-share-horizontal wslu-theme-font-yes wslu-main_content"> <ul> <li class="xs-share-li facebook wslu-no-extra-data"> <a href="#" class="xs-share-link" id="xs_feed_facebook" data-pid="6933" data-uri_hash="f51a77155514d43bdf7c460158f984d8" data-key="facebook" data-xs-href="http://www.facebook.com/sharer.php?u=https%3A%2F%2Fzoumekalytera.gr%2Flysosomika-nosimata-i-machi-gia-egkairi-diagnosi-isotimi-frontida-kai-axioprepeia%2F&t=%CE%9B%CF%85%CF%83%CE%BF%CF%83%CF%89%CE%BC%CE%B9%CE%BA%CE%AC+%CE%9D%CE%BF%CF%83%CE%AE%CE%BC%CE%B1%CF%84%CE%B1%3A+%CE%97+%CE%BC%CE%AC%CF%87%CE%B7+%CE%B3%CE%B9%CE%B1+%CE%AD%CE%B3%CE%BA%CE%B1%CE%B9%CF%81%CE%B7+%CE%B4%CE%B9%CE%AC%CE%B3%CE%BD%CF%89%CF%83%CE%B7%2C+%CE%B9%CF%83%CF%8C%CF%84%CE%B9%CE%BC%CE%B7+%CF%86%CF%81%CE%BF%CE%BD%CF%84%CE%AF%CE%B4%CE%B1+%CE%BA%CE%B1%CE%B9+%CE%B1%CE%BE%CE%B9%CE%BF%CF%80%CF%81%CE%AD%CF%80%CE%B5%CE%B9%CE%B1&v=3"> <div class="xs-social-icon"> <span class="met-social met-social-facebook"></span> </div> <div class="wslu-hover-content"> <div class="xs-social-followers"> 0 </div> <div class="xs-social-follower-text"> </div> <div class="xs-social-follower-label"> Facebook </div> </div> </a> </li> <li class="xs-share-li twitter wslu-no-extra-data"> <a href="#" class="xs-share-link" id="xs_feed_twitter" data-pid="6933" data-uri_hash="f51a77155514d43bdf7c460158f984d8" data-key="twitter" data-xs-href="https://twitter.com/intent/tweet?text=%CE%9B%CF%85%CF%83%CE%BF%CF%83%CF%89%CE%BC%CE%B9%CE%BA%CE%AC+%CE%9D%CE%BF%CF%83%CE%AE%CE%BC%CE%B1%CF%84%CE%B1%3A+%CE%97+%CE%BC%CE%AC%CF%87%CE%B7+%CE%B3%CE%B9%CE%B1+%CE%AD%CE%B3%CE%BA%CE%B1%CE%B9%CF%81%CE%B7+%CE%B4%CE%B9%CE%AC%CE%B3%CE%BD%CF%89%CF%83%CE%B7%2C+%CE%B9%CF%83%CF%8C%CF%84%CE%B9%CE%BC%CE%B7+%CF%86%CF%81%CE%BF%CE%BD%CF%84%CE%AF%CE%B4%CE%B1+%CE%BA%CE%B1%CE%B9+%CE%B1%CE%BE%CE%B9%CE%BF%CF%80%CF%81%CE%AD%CF%80%CE%B5%CE%B9%CE%B1+https%3A%2F%2Fzoumekalytera.gr%2Flysosomika-nosimata-i-machi-gia-egkairi-diagnosi-isotimi-frontida-kai-axioprepeia%2F&original_referer=https%3A%2F%2Fzoumekalytera.gr%2Flysosomika-nosimata-i-machi-gia-egkairi-diagnosi-isotimi-frontida-kai-axioprepeia%2F&related=xpeedstudio"> <div class="xs-social-icon"> <span class="met-social met-social-twitter"></span> </div> <div class="wslu-hover-content"> <div class="xs-social-followers"> 0 </div> <div class="xs-social-follower-text"> </div> <div class="xs-social-follower-label"> Twitter </div> </div> </a> </li> <li class="xs-share-li facebook-messenger wslu-no-extra-data"> <a href="#" class="xs-share-link" id="xs_feed_facebook-messenger" data-pid="6933" data-uri_hash="f51a77155514d43bdf7c460158f984d8" data-key="facebook-messenger" data-xs-href="https://www.facebook.com/dialog/send?link=https%3A%2F%2Fzoumekalytera.gr%2Flysosomika-nosimata-i-machi-gia-egkairi-diagnosi-isotimi-frontida-kai-axioprepeia%2F&redirect_uri=https%3A%2F%2Fzoumekalytera.gr%2Flysosomika-nosimata-i-machi-gia-egkairi-diagnosi-isotimi-frontida-kai-axioprepeia%2F&display=popup&app_id=2577123062406162"> <div class="xs-social-icon"> <span class="met-social met-social-facebook-messenger"></span> </div> <div class="wslu-hover-content"> <div class="xs-social-followers"> 0 </div> <div class="xs-social-follower-text"> </div> <div class="xs-social-follower-label"> Facebook-messenger </div> </div> </a> </li> <li class="xs-share-li viber wslu-no-extra-data"> <a href="#" class="xs-share-link" id="xs_feed_viber" data-pid="6933" data-uri_hash="f51a77155514d43bdf7c460158f984d8" data-key="viber" data-xs-href="viber://forward?text=%CE%9B%CF%85%CF%83%CE%BF%CF%83%CF%89%CE%BC%CE%B9%CE%BA%CE%AC+%CE%9D%CE%BF%CF%83%CE%AE%CE%BC%CE%B1%CF%84%CE%B1%3A+%CE%97+%CE%BC%CE%AC%CF%87%CE%B7+%CE%B3%CE%B9%CE%B1+%CE%AD%CE%B3%CE%BA%CE%B1%CE%B9%CF%81%CE%B7+%CE%B4%CE%B9%CE%AC%CE%B3%CE%BD%CF%89%CF%83%CE%B7%2C+%CE%B9%CF%83%CF%8C%CF%84%CE%B9%CE%BC%CE%B7+%CF%86%CF%81%CE%BF%CE%BD%CF%84%CE%AF%CE%B4%CE%B1+%CE%BA%CE%B1%CE%B9+%CE%B1%CE%BE%CE%B9%CE%BF%CF%80%CF%81%CE%AD%CF%80%CE%B5%CE%B9%CE%B1+https%3A%2F%2Fzoumekalytera.gr%2Flysosomika-nosimata-i-machi-gia-egkairi-diagnosi-isotimi-frontida-kai-axioprepeia%2F"> <div class="xs-social-icon"> <span class="met-social met-social-viber"></span> </div> <div class="wslu-hover-content"> <div class="xs-social-followers"> 0 </div> <div class="xs-social-follower-text"> </div> <div class="xs-social-follower-label"> Viber </div> </div> </a> </li> <li class="xs-share-li whatsapp wslu-no-extra-data"> <a href="#" class="xs-share-link" id="xs_feed_whatsapp" data-pid="6933" data-uri_hash="f51a77155514d43bdf7c460158f984d8" data-key="whatsapp" data-xs-href="whatsapp://send?text=%CE%9B%CF%85%CF%83%CE%BF%CF%83%CF%89%CE%BC%CE%B9%CE%BA%CE%AC+%CE%9D%CE%BF%CF%83%CE%AE%CE%BC%CE%B1%CF%84%CE%B1%3A+%CE%97+%CE%BC%CE%AC%CF%87%CE%B7+%CE%B3%CE%B9%CE%B1+%CE%AD%CE%B3%CE%BA%CE%B1%CE%B9%CF%81%CE%B7+%CE%B4%CE%B9%CE%AC%CE%B3%CE%BD%CF%89%CF%83%CE%B7%2C+%CE%B9%CF%83%CF%8C%CF%84%CE%B9%CE%BC%CE%B7+%CF%86%CF%81%CE%BF%CE%BD%CF%84%CE%AF%CE%B4%CE%B1+%CE%BA%CE%B1%CE%B9+%CE%B1%CE%BE%CE%B9%CE%BF%CF%80%CF%81%CE%AD%CF%80%CE%B5%CE%B9%CE%B1+https%3A%2F%2Fzoumekalytera.gr%2Flysosomika-nosimata-i-machi-gia-egkairi-diagnosi-isotimi-frontida-kai-axioprepeia%2F"> <div class="xs-social-icon"> <span class="met-social met-social-whatsapp"></span> </div> <div class="wslu-hover-content"> <div class="xs-social-followers"> 0 </div> <div class="xs-social-follower-text"> </div> <div class="xs-social-follower-label"> Whatsapp </div> </div> </a> </li> </ul> </div>